It happened 2 days in a row.
When they were drawing blood from D, the nurses turned to me and asked me: Mummy, are you ok?
Of course, I am ok! I am not the one being poked!!
And on another note: Why do they all call me D's mummy? They jolly well know her full name. Why don't they just call me Mrs A?
Sunday, January 26, 2014
Tuesday, January 21, 2014
8 weeks
8 weeks have gone by since D's first pamidronate infusion
She is due for her next one end of this week.
Not sure how her bones have strengthened since the last infusion. We wouldn't know for sure until she takes her next bone mineral density test and my guess is that it wont be done until October, a year from her last.
But on the Vitamin D front, she is still Vit D deficient.
She has been on Vit D supplements (2000 IUs a day) for close to 3 months and yet there is no improvement.
Vitamin D is a group of fat-soluble secosteroids responsible for enhancin intestinal absorption of calcium phosphate (Source: Wikipedia)
They are not sure why even with the supplements she is still deficient. However, they are unwilling to increase her supplementary intake ... yet ...for fear of toxicity.
So it means that she will have to take an additional blood test in 3 months just for Vitamin D levels.
My little trouper hates taking blood tests.
She has no problems nor fear when they insert the cannula.
But complains when they draw blood!! They are like vampires, she complains. Why do they need two vials just to test for VItamin D, she wants to know. I have no idea!!
She insists on the "magic cream: for the procedure. This cream numbs her hand so she doesnt feel any pain. But the funny thing is, doesnt it hurt more to insert the cannula? For that she doesnt need the cream!!
I really dont understand why. With the cream, we end up spending at least an additional half an hour at the hospital, waiting for it to take effect. With the cream, I end up paying more.
I just want to get it done and over with, and get out of that place as fast as I can.
But, I give in to her. ... just to let her have some control over the situation she is in. Hopefully it makes her feel better about the whole situation she is in.
She is due for her next one end of this week.
Not sure how her bones have strengthened since the last infusion. We wouldn't know for sure until she takes her next bone mineral density test and my guess is that it wont be done until October, a year from her last.
But on the Vitamin D front, she is still Vit D deficient.
She has been on Vit D supplements (2000 IUs a day) for close to 3 months and yet there is no improvement.
Vitamin D is a group of fat-soluble secosteroids responsible for enhancin intestinal absorption of calcium phosphate (Source: Wikipedia)
They are not sure why even with the supplements she is still deficient. However, they are unwilling to increase her supplementary intake ... yet ...for fear of toxicity.
So it means that she will have to take an additional blood test in 3 months just for Vitamin D levels.
My little trouper hates taking blood tests.
She has no problems nor fear when they insert the cannula.
But complains when they draw blood!! They are like vampires, she complains. Why do they need two vials just to test for VItamin D, she wants to know. I have no idea!!
She insists on the "magic cream: for the procedure. This cream numbs her hand so she doesnt feel any pain. But the funny thing is, doesnt it hurt more to insert the cannula? For that she doesnt need the cream!!
I really dont understand why. With the cream, we end up spending at least an additional half an hour at the hospital, waiting for it to take effect. With the cream, I end up paying more.
I just want to get it done and over with, and get out of that place as fast as I can.
But, I give in to her. ... just to let her have some control over the situation she is in. Hopefully it makes her feel better about the whole situation she is in.
Sunday, January 12, 2014
My Little Drama Queen
My little drama queen attends drama classes. This is her 4th year doing so.
Term just started this week.
After class when I picked her, I asked her: How many new students are there in the class this term?
She replied: About 4 or 5.
Me: So who are the old students that are still around?
D: Old students? There are no old students!
Me: You know what I mean!
D: You mean the current students, don't you?
Me: No, I don't. Current students means all that in the class this year. I just want to know who the students who were in the class previously and are still continuing. The old students.
D: I am NOT OLD!! All the students in the class are young Mum. And I am not telling you since you called me old! Hmpf!
Tell me: why do I bother sending her to drama classes? She sure doesnt need them She's drama enough!!
D: You mean the current students, don't you?
Me: No, I don't. Current students means all that in the class this year. I just want to know who the students who were in the class previously and are still continuing. The old students.
D: I am NOT OLD!! All the students in the class are young Mum. And I am not telling you since you called me old! Hmpf!
Tell me: why do I bother sending her to drama classes? She sure doesnt need them She's drama enough!!
Friday, January 10, 2014
D, me and homework
Me: Do you have any homework today?
D: No.
Me: Yay!!
D: you're weird, Mum.
Me: Why?
D: Because all my classmates' mothers rejoice when the teacher gives lots of homework. But you....
Me: Aren't you glad I am happy when you have no homework?
D: Yah, but you are still weird!!
Friday, January 3, 2014
Happy New Year
Happy New Year!!
1st January 2014 has come and gone.
New Year is always a quiet celebration at our home due to the start of the new school year.
We are already into the 2nd day of the school year, and the end of the first school week!
Have you made any resolutions for this year?
Many people do not make any because they know that they can never keep it for long.
But I think it is good to set yourself some goals at the start of each year.
We should not be too ambitious and set ourselves impossible targets.
Mine for this year are:
To scream less, to smile more,
To eat less, to walk more,
To grumble less, and to pray more!
What are yours for this year?
1st January 2014 has come and gone.
New Year is always a quiet celebration at our home due to the start of the new school year.
We are already into the 2nd day of the school year, and the end of the first school week!
Have you made any resolutions for this year?
Many people do not make any because they know that they can never keep it for long.
But I think it is good to set yourself some goals at the start of each year.
We should not be too ambitious and set ourselves impossible targets.
Mine for this year are:
To scream less, to smile more,
To eat less, to walk more,
To grumble less, and to pray more!
What are yours for this year?
Wednesday, December 18, 2013
'Tis the season ...
... to be jolly, falalalala lalalala!
7 days to Christmas. Have you done your Christmas shopping yet?
I hope you have.
Well, I only started yesterday. I spent 2 hours and managed to buy 4 pressies - would have been 5 if not for the shop not having stocks of one.
It helps if you know what you want to get and where to get them.
I love shopping early in the morning when there isnt much of a crowd. Once it hits lunch hour and the shoppers come in droves,I much prefer to make my way home. Only problem is that many shops only open at 11am, some at 10, so I only have 2 good hours of shopping a day.
I am also one that shops better under pressure ie when I dont have much time left. Makes me less wishy washy. When I shop early I tend to come across other things later which I may feel may make d a better gift. That's me.
Tis is also the season to go on vacations!!
With at least 6 weeks of school vacation for the children, we usually travel at this time of the year.
This year we went to Melbourne, and I managed to get help in planning for my trip from a fellow blogger, Mott. (http://mottisland.com/). Thanks Mott for helping me plan the meals during my trip. I must say: Melbourne has amazing eats!! The range of restaurants and the quality of the food probably helped it to win "The best city to live in" title.
Wishing all a Blessed Christmas. May it be filled with peace, hope, love, laughter and good food!!
7 days to Christmas. Have you done your Christmas shopping yet?
I hope you have.
Well, I only started yesterday. I spent 2 hours and managed to buy 4 pressies - would have been 5 if not for the shop not having stocks of one.
It helps if you know what you want to get and where to get them.
I love shopping early in the morning when there isnt much of a crowd. Once it hits lunch hour and the shoppers come in droves,I much prefer to make my way home. Only problem is that many shops only open at 11am, some at 10, so I only have 2 good hours of shopping a day.
I am also one that shops better under pressure ie when I dont have much time left. Makes me less wishy washy. When I shop early I tend to come across other things later which I may feel may make d a better gift. That's me.
Tis is also the season to go on vacations!!
With at least 6 weeks of school vacation for the children, we usually travel at this time of the year.
This year we went to Melbourne, and I managed to get help in planning for my trip from a fellow blogger, Mott. (http://mottisland.com/). Thanks Mott for helping me plan the meals during my trip. I must say: Melbourne has amazing eats!! The range of restaurants and the quality of the food probably helped it to win "The best city to live in" title.
Wishing all a Blessed Christmas. May it be filled with peace, hope, love, laughter and good food!!
Tuesday, December 3, 2013
The first hurdle
For those of you who are following my daughter's medical condition, we have crossed the first hurdle.
She has had her first pamidronate infusion last week and will be doing it every two months.
It went as expected:
* not covered by the insurers as it is congential - such a bummer this is!!
* she had the fever - but thank God it didnt go too high. 8 hours after the procedure she still hadnt had any fever and we were rejoicing until the doc told us that it will only come on after 24 hours. Sure enough, it did. But luckily it hit a peak of 39C and then it came down over a two day period.
* her bones ached for days after.
* no nausea, allergies. Praise the Lord!!
* she is not drinking as much as she should. I now worry when the procedure is done during the school term as there will not be anyone monitoring her fluid intake!
The unexpected were:
* she didnt cry when the cannula was inserted. So proud of her. Such a brave girl.
* her pulse rate dropped mid-way during the procedure, and they were really concerned about it. They did get it up back to normal when they realised it.
* she lost her appetite for food for a few days. Eating half her usual :(
* one of her tooth fell out mid-way during the infusion!
* she was in high spirits despite everything!!
The disappointments:
* the insistence of the hospital on my child being wheelchaired around for her kidney and bladder scans. My child is well and capable of walking. We wasted an hour just waiting for the porter to come get her and then wheel her back.
* the late start of the procedure. It didnt start until 7.30pm when she was admitted at 3pm. As the procedure took 4 hours in total, the poor girl was totally tired out at the end of it, as she was not really able to rest despite it being administered intravenously as she was constantly montiored. Every half to an hour there was someone coming in to check her for bruising, allegies, blood pressure, pulse rate, temperature, etc.
* Not being able to sleep even after the procedure as she was still being constantly monitored. They were taking her temperature, blood pressure and pulse rate all through the night. And even I couldnt sleep as every time they came into the room, they insisted on checking with me whether she had drunk any water and if she had gone to ease herself.
* the error of the pharmacist on duty in the supplements given whilst in the hospital!!
* the long time it takes for them to dispense medications for us to take home with us. 4 hours??? I would have waited a much shorter time had they allowed me to go to the hospital pharmacy to collect it on my own!!
* The huge BILL!!!
What I was happy with about the whole thing
* Prof was more chatty and forthcoming with information as compared to when we were in his clinic. My guess is that he has too many patients to see during his clinic consultation hours and all he wants is to get them out the door!!
* the nurses were really attentive and took good care of my child.
* I was given an orientation of where I was to go for her future visits, which fortunately will not involve a hospital stay!!
This is going to be something we have to do for many years to come!!
She has had her first pamidronate infusion last week and will be doing it every two months.
It went as expected:
* not covered by the insurers as it is congential - such a bummer this is!!
* she had the fever - but thank God it didnt go too high. 8 hours after the procedure she still hadnt had any fever and we were rejoicing until the doc told us that it will only come on after 24 hours. Sure enough, it did. But luckily it hit a peak of 39C and then it came down over a two day period.
* her bones ached for days after.
* no nausea, allergies. Praise the Lord!!
* she is not drinking as much as she should. I now worry when the procedure is done during the school term as there will not be anyone monitoring her fluid intake!
The unexpected were:
* she didnt cry when the cannula was inserted. So proud of her. Such a brave girl.
* her pulse rate dropped mid-way during the procedure, and they were really concerned about it. They did get it up back to normal when they realised it.
* she lost her appetite for food for a few days. Eating half her usual :(
* one of her tooth fell out mid-way during the infusion!
* she was in high spirits despite everything!!
The disappointments:
* the insistence of the hospital on my child being wheelchaired around for her kidney and bladder scans. My child is well and capable of walking. We wasted an hour just waiting for the porter to come get her and then wheel her back.
* the late start of the procedure. It didnt start until 7.30pm when she was admitted at 3pm. As the procedure took 4 hours in total, the poor girl was totally tired out at the end of it, as she was not really able to rest despite it being administered intravenously as she was constantly montiored. Every half to an hour there was someone coming in to check her for bruising, allegies, blood pressure, pulse rate, temperature, etc.
* Not being able to sleep even after the procedure as she was still being constantly monitored. They were taking her temperature, blood pressure and pulse rate all through the night. And even I couldnt sleep as every time they came into the room, they insisted on checking with me whether she had drunk any water and if she had gone to ease herself.
* the error of the pharmacist on duty in the supplements given whilst in the hospital!!
* the long time it takes for them to dispense medications for us to take home with us. 4 hours??? I would have waited a much shorter time had they allowed me to go to the hospital pharmacy to collect it on my own!!
* The huge BILL!!!
What I was happy with about the whole thing
* Prof was more chatty and forthcoming with information as compared to when we were in his clinic. My guess is that he has too many patients to see during his clinic consultation hours and all he wants is to get them out the door!!
* the nurses were really attentive and took good care of my child.
* I was given an orientation of where I was to go for her future visits, which fortunately will not involve a hospital stay!!
This is going to be something we have to do for many years to come!!
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